daddysgirl-2

Lots of good thoughts and prayers, for you and Hans, your family and the doctors, Kris.

Jolene

Susanne,

Sending you deepest sympathies on the loss of your dad. I lost my dad 18 months ago, and my mom is in the end stage of lung cancer. This site has been such a healing grace for me, and others, who have lost loved ones to CC. Please visit often, to receive the love and prayers that are offered to you. Wishing you good memories of your beloved dad, and until you are able to smile again, we walk beside you holding you up.

Peace be with you and your family,
Jolene

I like the idea of February as CC awareness month.
Last week when I brought mom in to see the onc at our local cancer center, they remembered my dad was a patient there. They thought pancreatic cancer, but I reminded them it was cholangiocarcinoma. They replied, “that’s right. should’ve remembered, we don’t get many of that cancer.” I told them about this foundation, and left a few brochures with them. I hope that if/when they check in, they notice we have an awareness month, and read all the amazing stories left here.

It only takes a spark to get a fire going…

Jolene

Bazel,

Thanks loads for this info. I’ve just passed the year-and-a-half anniversary of dad’s passing from CC, and my mom is sitting 5 feet from me, end stage adenocarcinoma of the lungs coupled with Parkinson’s disease. My head is splitting, and as I watch over mom, I seem to relive dad’s last days over and over.

I prefer holistic approaches for relief~and do so appreciate your thoughtfulness in sharing this info. I’ve wanted to try Tai Chi for years, but I am such a klutz I trip myself.

Peace…Nameste.
Jolene

Kay, so very sorry about the loss of your mom. May you find peace and comfort in the cherished memories of your mom. Until you are able to smile again, we walk beside you.

Hugs,
Jolene

savinggrace and fightforlj, sending you prayers for strength and endurance as you advocate for your loved ones. It truly is a frustrating time to deal with such a wicked diagnosis, only to have to fight with hospitals, insurance, etc. I remember all to well, and it doesn’t help that this cancer is so unknown to many in the medical profession…of course, that may depend on where people are geographically located.

As you will note from many on this panel, attitude is everything! Take a deep breath, stabilize and go to it.

As for a second, third opinion…as many as it takes to get the job done.
When attempting to get my dad a second opinion, he was too weak to travel out of the area…the only other opinions we could get were from doctors in the same office!!! Not really an unbiased situation. Mayo-Rochester looked at the files that were sent to them, and replied they concurred with original findings. Dad always hoped he could’ve had tests retaken for an actual second look…everything was based on original tests, that we had to FIGHT to get in the first place. If you are in a position to, advocate as hard as you can for your loved one.

Courage,
Jolene

I noticed that in our clinics, we can now access our med files online??? I haven’t tried it yet; is this a possibility, fightforlj?

Welcome, Tom, and I’m glad to hear that your treatments are going well. Good to see your chemo nurses have a great sense of humor…my dad’s nurses did too, and he so enjoyed visiting with them. (They even baked goodies for him on his chemo days!)

This techno world does allow for flexibility. As dad’s fulltime caregiver, I was able to work from whereever we were via portable internet/laptop and iphone…I remember once thinking…who needs to be so available? I will never question this again! I even conducted a business mtg via iphone during an intermission at a show mom and I were recently at…much to her chagrin…I reminded her that because of this, I am able to be available to her. LOL

Seriously, I wish you the very best of luck, Tom.

Jolene

As a Minnesota girl, I’m all for the purple hat…our Vikes are doing pretty well this season!