elib03

Dear kay,

I too lost my mom this year. I send my heartfelt condolences to you and your entire family. This cancer is vicious! Christmas was hard for me too. Every holiday since her death has been hard. Your post made me go back and count the weeks that we had with my mom from the time of diagnosis. We had 9 weeks with my mom. She was diagnosed on July 1st, she was 54. I feel as if I am suffering from post traumatic syndrome after taking care of my mom and watching my mom suffer and eventually pass to her next life. Those memories and that part of your life will change you. But please take time to grieve it helps. There is nothing to say to help you through this horrible time. But I can say you are not alone, and eventually you will be ok, never the same but ok! Take care of yourself, Elicia-

Dear Michelle,
We lost my mom this year on Aug 29th…she only made it for 3 days in hospice too. But she was surrounded by the people who loved her. I know exactly how you feel. I could not put what I went through into words…it was a blurr. You are in my thoughts and prayers. Take care, you are brave. Elicia

My mom passed away from this cancer on aug 29th. My family and I struggled with this because she had 5 children and 4 brothers and sisters…so we knew it could be long when we opened the mic up.

So we all wrote out what we wanted to say, memories, funny interesting facts that made us love them, funny memories to make people laugh. We wanted to capture how special she was. I wrote out ahead of time generally what I wanted to cover or share. I wrote and wrote! As you write it is much like a journal, it hurts but it feels good after. So get it all out on paper. Then read it aloud to yourself. Know that when you get up there you may get nervous and there is no way you are actually going to remember or talk about it all. So just know at least 3 things or a general theme you want to share about the man you love. After my family members began… things came to mind and I knew exactly what I wanted to say and the words came out perfectly. The 3 general things I wanted to share came out too. For me my theme was “My mom made things pretty”. She saw the beauty in everything and everybody even when know one else could. Because she was an artist and poet it worked. OK I’m rambling, sorry hope I helped a little, hope it makes sense. Blessings, Elicia

Jolene, we had the same problem, the Doctors knew it was bile duct cancer every Dr we saw said it was cholangiocarcinoma…but Hospice would not call it that, they would only let it be called “gallbladder cancer”. We tried over and over to correct them but they would not change it.

Another problem was that not enough Doctors knew enough about it. My mom was her Doctor’s 2nd patient w bile duct cancer. She desperately needed doctors that knew what they were doing…she needed to leave the state.

Yes thanks be to God for this site! We need to get the word out there!

Blessings, Elicia

Sandy,
Watching a loved one suffer, and hearing the Doctors prognosis, is heart-wrenching. I just went through this with my mom. I will pray for you to be strong, and for your brother to have peace. I will pray, just know that you are not alone. God is always there- Blessings Elicia

Hi David, the only medication that helped my mom was Zophran or spelled Zofran. It worked miracles, she tried so many different combos and Zophran worked right away! The only thing is, that it is $$$ and some insurance companies wont pay for it /…I’m praying for you, nausea stinks!- Elicia