jean

Hi John

It sounds as if you’ve had very good results from the chemoembolization. A very good reason to be happy I’d say! I’m so glad to hear that. The clinical trial sounds interesting. I haven’t heard of plitidepsin. Do you know what class of drug it would fall under? Have there been previous trials using this drug with Gemzar or in combination with other drugs?

Wishing you continuing success as you move forward with your treatments!

Jean

Kirsten

Thanks for passing along this very good news! And, yes, we all do understand.

Wishing your dad continuing good news and a wonderful trip to Norway!

Jean

Rose May

I just can’t imagine how frustrating this must be for you. Hopefully they’ll get this resolved tomorrow, and you can go ahead with the surgery on the 25th. It must be so difficult having the surgery continually postponed.

I understand your fear about the surgery and not being able to have the resection if anything else is found. My surgery was 10 months ago and I remember that fear so well. They were able to do my resection with wide negative margins, multiple biopsies were done and they all were negative.

I know it’s a long hard fight for you just to get ready to have the surgery. But, please keep your hope and your faith and your strength. We’re all behind you through all of this.

Just tell them they have till the 25th to have you ready for the surgery, so they’d better get to work! That reminds me of my last words to my surgeon in the operating room before my surgery. I just said to him that “It’s your job today to cure me”and he said he’d do his very best to do that. It seems funny looking back, but I needed somehow to clearly convey that to him!

I’ll be thinking of you tomorrow and hoping and praying for the very best.

Jean

Deb

Just thinking of you tonight! I don’t know if this makes sense, but I think part of the anxiety comes from replaying all of the overwhelming fear and anxiety when going through everything in the very beginning. Each CT scan brings up ALL of those same feelings. So, I think to myself “now how is this time different”? It’s different for you because it’s been two years!!! I keep telling myself that, though the feelings are exactly the same, the circumstances are much different. What I feel then is out of propotion to the reality of the situation. Just for me to understand where my feelings are coming from just seems to help. I hope that makes some sense!

Remember to try to stay in the moment and not go to the “what if” places. Boy, that can really bring on the anxiety! And plan a celebration for the good news that you’re going to receive…I’ve already planned mine!!!

Wishing the very best news for you tomorrow Deb!!!!!!!!!!!

Jean

Debrah

I can relate so much to what you wrote. I too get so overwhelmed when I read all of the posts and I want to write something, but I just don’t know what to say. This truely is a group of such amazingly brave people. But, it is a reminder as well that the cancer can come back. I try my best to really live in the moment and not in a place of fear…somedays I can remain so optimistic and then sometimes I just can’t. And I read what everyone is experiencing, the pain and fear, and trying their best to struggle against this cancer that very few people had even heard of before they were diagnosed. I am constantly struck by the strength of everyone here and how much everyone gives of themselves while dealing with so much. It is really an amazing group of people I think!

I’ll have my almost one year scan on the 26th, all of this starting on the 15th of April last year. Such words to hear “unremarkable” “no areas of concern”…who would have thought such words would have such meaning, the ability to bring such joy!

I will be sending all of my prayers and positive thoughts to you on the 17th and hoping so much for good news for you!

Jean

Tess

I’m so very sorry to hear of the loss of your beloved dad. From all of your postings, we all came to know him in some way and I could always picture his steadfast optimism in the face of all he went through. I know he was surely loved so very much.

My thoughts and prayers are with you and your family.

Jean

Kris…I hope all went well today and that, after the steroids, you were finally able to start the chemo. I know you have such a fight ahead of you. You just need to get this going, get that tumor shrunk, and then find a good surgeon. I think of you so often and am sending all positive thoughts and prayers your way.

Lisa…I bet the end of April is looking very far away! I think it’s a very good decision to quit working. Do you think the new chemo is causing more side effects as well? I so hope you’ll start feeling better soon. Am sending all my prayers and positive thoughts to you as well.

Jean