lainy
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Great report Marion and you really are too kind. I wish everyone could meet you to see the dedication and the heartfelt look on your face and how you are so committed to killing this monster. We are so uplifted by you and honestly it was a pleasure to meet you and be with you! Thanks to you and the wonderful Board for all they do.
Dear Grace, I am so very sorry to hear about your father’s terrible time and what you have gone through. Thank goodness he had such a wonderful daughter and family to help him through this nightmare journey. Please feel free to write us anytime and please accept our deepest sympathy. You write us anytime you like we are here and ready to read your posts. Remember that your father will always live in your heart and mind, he has just gone to another room. Prayers to you and your family.
Hello Michelle and welcome to the best little club in the world that no one wishes to join. Here, you are NOT alone. You will find that after the initial onset of feeling totally helpless and the shock that this is happening, you will become angry and that brings strength, the strength to fight. You will need to become a strong advocate for your dad by taking notes and seeing that he gets the best care even if it requires second and third opinions. You have come to the right place to cry, vent ask or to help others by telling of your own journey. We try to be optomistically realistic! Good luck, and all our thoughts are with you.
That all sounds very good. Even though this turns one’s world upside down and inside out it is somewhat comforting to at least know you have a plan. We will be sending good luck and prayers your way. Please keep us posted.
Jennifer, we are so very sorry to hear about your loss. We know that CC is most often diagnosed “too late” and the treatments are iffy but we do believe in being realistically optimistic. Your mom will live on in your heart and mind and memories forever and I just believe that she is watching over you now. It does not matter when you find us we are here for you and please keep us informed on how you are doing. Prayers go out to you and your family.
Hi Rose and welcome to the best little club in the world that no one wishes to join. We are fighters and strongly believe in second opinions. You can be a good advocate for him, love him and be brave for him. Not sure if he is weak from the treatment or the CC. Is weakness the only side effect he is having?
You might ask the doctor about a regiment of vitamins. Just not sure what is going on there. What part of this world do you hail from? I am sure you will get some good answers on this Board. Good luck and welcome.Hi Rose, Sarna is an over the counter cream you can get at Walgreen’s or CVS.
It’s very strong so you really can’t use it more than a couple of weeks. Also Teddy found ice bags helped. I am not a doctor but I don’t understand why they wouldn’t check on that stent. Your comfort is paramount! Many have had their stents fixed and still had surgery. Good luck fellow Wisconite!Dear Heather, we want you to hang in with us forever, if that is what you want.
Say, ask and vent to your heart’s content. I told a few of the doctors that I met at the convention that I was addicted to this site and the people on it. No matter what stage we are at these wonderful members help get us through. Its too bad that we are all spread so far apart as I firmly believe it would be most helpful to us all if we could meet. I can’t begin to tell you how wonderful it was this weekend to meet these Oncologists and have them talk to us about our plight. We even had an Oncology Nurse whose 10 year old nephew started a marathon in his city for CC. I think it would be great if we could open ourselves to the world with a marathon of some kind. The one thing all the doctors agreed on was that this is still an orphan disease and it is still being treated that way. There are a lot of ways everyone could help that would be so awesome! I hope Em is doing ok and together you 2 girls will conquer as before. I would not expect less of you at this point as it’s only been a month!
Give Em a kiss, please stay with us, we need you too!!Hi Kid. I have an idea. I am not a Psyche guy but and I could be all wrong but…
have you opened up to him at all why you are feeling the way you are? How about for his birthday something that may help you both? Spend the time putting together, with him, a memory book of his Grandpa? He will then feel part of what you are going through, it will be a bonding time and he will have a wonderful memory book. Oh, and do a lunch out or dinner out just the 2 of you.
Maybe it would help all the way around. Children are a lot smarter than we give them credit for and maybe he just needs to know this affects him too and that you can lean on him just a tad. Thinking of you!Dear Natasha, we are so very sorry to hear of your dad’s passing. It’s all so unbelievable that so much can happen in so short of time. Perhaps your dad went on ahead to pave the way for your mom to follow down the road when its time. You sound like a wonderful daughter and he knows you will be strong and
do what has to be done. Our prayers are with you.Hi Ron. You said it beautifully and I know just how you feel, as Teddy’s Care giver & wife. This really does re define your whole life!
