lisacraine
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Kristin,
Thank you for sharing so openly with all of us. I have two sons, Jake is 21 and Noah is 15; I have CC and I am 48. My world was turned upside down like everyone with this diagnosis. I worry the most about my sons and my husband, it makes me so sad to think of not being here for them. I think being the patient is actually easier than watching someone you love go through cancer. I thought cancer was a physical disease till I was diagnosed then I realized that it is so psychological too. I also have changed my diet and I do feel better. There are so many on this site(including me) that have been given a poor prognosis and we are here and fighting. Don’t give up hope.
Praying for you,
LisaKristin, I don’t have any answers but I will start praying. I am so sorry your family is going through this.
LisaEli, this is fantastic news. I am so happy for both of you. I will pray for continued clean scans and good numbers…..go celebrate !
Hugs, LisaHolly,
We have two sons, Jake is 21 and Noah is 15. We have been very open with them because at first I did not give them much info. about my cancer and they were hearing things from other parents and social media…besides researching it on the Internet. so we decided we wanted to be the first to tell them what was going on. My best support comes from this site and other ladies I meet with for lunch that have CC. I was told I am not eligible for a transplant because I had metastisis in the liver. It doesn’t make sense that if the cancer is only in the liver why can’t they take the liver out and replace it. I have read a lot about the immune suppressant drugs you take for transplants and that can spread cancer elsewhere in your body if you have cancerous cells in your body. I just pray my doctors make the best choices and I really trust them.
LisaLeeAnn,
I have had two liver resections. The first time they removed 70 % of my liver. The cancer came back the next year and I had another resection. My surgeon removed the tumors, used a nano knife and internal radiation. Mine was very close to portal vein so going in they were not 100% they could get the one tumor but they did. I see Dr. John Fung at The Cleveland Clinic Foundation, he is an outstanding liver surgeon. Feel free to call me with any questions, 330-903-6868.
LisaLynn,
My port, should and arm was sore for months. My port has been in for two years and it still bothers me once in awhile. I was having bad pain about a month ago and they did an ultrasound to make sure I didn’t have a blood clot, it was fine.
Advil helped me.
Good luck,
LisaBruce, there isn’t enough research and everyone responds differently. The 5FU worked for me and the Gem/Cis did not. We got the results back from a lab that analyzed a piece of my original tumor that had been frozen. I have two identifiable mutations so next time we should be able to use a more specific chemo that targets those mutations. Did they freeze any of your wife’s tumor for research ?
Lisa
