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We had a similar day. My husband fell and got a concussion on Tuesday morning and has been in bed ever since. Today he was almost desperate to get up and go for a drive — so, of course we did. We had to pull over twice for him to vomit. It was so sad but he wanted to be out and see the blue sky so badly. He was anxious to get back home to bed. He has not been able to eat much at all today although has had a good appetite the few days before yesterday. We try to do what he is up to, but he seems up to less and less. I teased him today that maybe he’ll do his energizer bunny routine and be up again soon. We keep looking for the best, too. Blessings to you. Susan
Stubborness can be a most admirable trait. May it carry you through any tough days that may come your way. If Lainy is stubborn then I’m in ‘cuz I love her just the way she is. Keep posting – your post lifted my spirits today. Blessings, Susan
What grace and acceptance you and your sister demonstrated. God has truly blessed both of you with each other and in sharing this cc experience with all its ups and downs, you two made the best of it. May your blessings abound in 2011. I know you will always miss your sister, but you carry her in your heart. Blessings, Susan
This is Susan and my husband has CC. He was diagnosed in late July 2010 at stage 4. I’ve been confused with Jennifer before….Blessings to you. Susan
Do you ever go to the grocery store and the clerk says, “How are you today?” and you want to SCREAM “my mom just died.” I’ve been there when I’ve had a loved one die. Of course the clerk doesn’t know and they are just greeting you, but your pain is very real. Yes, it will become less acute at some point in the future. The pain will become more of a dull ache than a sharp pain. My thoughts and prayers are with you. Blessings, Susan
I agree with Lainy and Nancy – I would not wait. Go now while he is feeling ok. The future generally doesn’t get better, so enjoy every day and the sooner the better especially for a trip. Let’s hope and pray that he gets many months of good quality life, but in case it doesn’t go that way, you’ll have the memories of this trip. Hope it is wonderful. Blessings, Susan
So sorry to hear that your family has to go through this. It is such a difficult process. Our hearts and prayers go out to you and your whole family. Please keep posting and we’ll keep track of how things are going. Blessings, Susan
I want to be part of your club. I don’t have a sister named Melanie, but my brother’s name was also Barry and I have a cousin named Barry. I love that name and the men I have known associated with it. Blessings, Susan
Harmony – It is so wonderful to hear good news. Congratulations! Revel in these moments! So happy for you. Blessings, Susan
Dear Lots – You are absolutely right that educating yourself is the best first step. While everyone reacts so differently to this cancer and there are many physical differences in where each one’s tumor(s) are located, etc., we have been told by more than one oncologist that frequently with inoperable tumors they say 4 to 6 months without treatment (chemo) and maybe up to a year with treatment. However, you will find people on this site that died 2 days after diagnosis and thankfully, those who are here 5 years later. It is very individual. No one reacts the same. My husband is 58 and his primary site of cancer is in the upper lobe of the liver from the pancreatic duct. He has not needed stents (so far), he does not get jaundiced, he has not had an infection since he was diagnosed in late July 2010. He has had other things – nausea, vomiting, weakness, water retention, pain. Every month they increase his pain patch to control the pain and we have vicodin for break through pain. He has changed his diet and a soft diet seems to help at this stage. I wish I could give you better information and as you spend time reading on this site, you will learn so much. I have done internet searches, but I have learned more on this site than anywhere else. Also, the kindest people you could ever hope to know are here. Welcome to our family although we are so sorry you had to find us. Post often, ask whatever questions you want, use the search bar for specific topics on this site. Embrace your good days with joy and appreciation and hold on tight on the bad days. It is a roller coaster ride and much of it is not fun. The good news is that you have her today to hold close, create precious memories, and let her know how very much you love her. Blessings to you and your family, Susan
Dear Joolz – So sorry that your health has been a battle. What a wonderful attitude you have about not moving into the Land of Hysteria – I love that! You are not dead and have a lot of life to live regardless of the number of days. There is so much joy to be made and precious memories. Read some of Lainy’s posts of how she and Teddy made their time together so special. We hope you find the strength and friendship on this site that you desire. Blessings, Susan
Hi Maria – Your positive post is heartwarming. Welcome to our family. We are here for you to share your feelings, positive and negative, ask questions, whatever. What good news that your tumor shrank. So pleased for you. You are in good condition and seem to be doing the right things – nutrition and exercise. Good for you! Please continue updating your status or just coming back to chat. Blessings and prayers going out for you. Susan
Dear Codergirl – My heart goes out to you at this time of pain and loss. Who even wants to go back to work and try to resume normal. Use Lainy “new normal” which, for now, is not as happy and doesn’t hold as much promise for the future, but it will. You have a life ahead of you and after a period of grieving (which you need), you will once again find the joys in small things and big things. I would encourage you to find a grief support group where others who are experiencing loss share their feelings and you can share yours. Not that you really want to go to this group, but being with others who “know” your pain is really helpful. Keep posting. Know that you carry mom in your heart. Know that we care. Blessings, Susan
My husband developed a rash. The oncologist prescribed a cream for it. I can’t say how effective it was but eventually the rash went away. As Charlea mentioned, we tend to attribute many things to CC but they may or may not be related. Occasionally my husband has itching, which is liver related and we have a different medication for that. It comes and goes for him. Good luck. Susan
