lainy

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Viewing 15 posts - 9,286 through 9,300 (of 10,019 total)
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  • in reply to: Goodbye my beloved husband, James Bell #29486
    lainy
    Spectator

    Dear Danielle & Family, we are so sorry to hear of Jim’s passing.

    A Letter From Heaven by Author Ruth Ann Mahaffey

    To my dearest family, some things I’d like to say.
    But first of all, to let you know, that I arrived okay.
    I’m writing this from Heaven.
    Here I dwell with God above.
    Here, there’s no more tears of sadness;
    here is just eternal love.
    Please do not be unhappy just because I’m out of sight.
    Remember that I am with you every morning, noon and night.
    That day I had to leave you
    when my life on earth was through.
    God picked me up and hugged me
    and said, “I welcome you.
    It’s good to have you back again,
    you were missed while you were gone.
    As for your dearest family,
    they’ll be here later on.
    God gave me a list of things,
    that he wished for me to do.
    And foremost on the list,
    was to watch and care for you.
    And when you lie in bed at night,
    the day’s chores put to flight.
    God and I are closest to you…
    in the middle of the night.
    When you think of my life on earth,
    and all those loving years.
    Because you are only human,
    they are bound to bring you tears.
    But do not be afraid to cry:
    it does relieve the pain.
    Remember there would be no flowers,
    unless there was some rain.
    One thing is for certain, through my life on earth is over.
    I’m closer to you now, than I ever was before.
    There are many rocky roads ahead of you
    and many hills to climb;
    Together we can do it by taking one day at a time.
    And now I am contented….
    that my life was worthwhile.
    Knowing as I passed along the way
    I made somebody smile.
    When you’re walking down the street
    and you’ve got me on your mind;
    I’m walking in your footsteps
    only half a step behind.
    And when it’s time for you to go….
    from that body to be free.
    Remember you’re not going…
    your coming home to me.
    *******************************Prayers to you, Danielle and your Family

    in reply to: Remaining hopeful during difficult times #29276
    lainy
    Spectator

    You done good, Danielle. The hardest step to take but it had to be done. Spend this time now loving, chuckling and making a few more family memories. You are very lucky to have loving family around you. Your whole family is in our prayers.

    in reply to: MRI results…mixed bag #29457
    lainy
    Spectator

    Well, Kris, I did not hear the word “bad”. So to me that is all good news. Hoping for the best for you!!!

    in reply to: increasing appetite #29436
    lainy
    Spectator

    I think loss of appetite is normal with what our loved ones go through. I found with Teddy the best was to make him comfort food. Home made chicken soup, pasta, chicken and dumplings. Jello and pudding and canned peaches. Boost with breakfast. Usually eggs for breakfast. Tis a long, slow road but all of a sudden you will see a little hunger return along with more of an enjoyment in eating.

    lainy
    Spectator

    Oh my goodness, what a wonderful story. Thank you so much for that good news and our hope is for your mother to keep up the good work. Para sailing???? Fabulous.

    lainy
    Spectator

    Hi Bugsie! Sometimes the waiting game is worse than the treatments. For 4 years now we have played the game every 2 months. Teddy’s LABS were great this week and the PET Scan is Tuesday. Even though he had great LABS you just don’t believe all is good until that scan. Many of us here know the feeling you are going through. Every now and then Teddy’s back gives some discomfort then it goes away. I would ask the doctor but so much extra KRAP just seems to go along with this CC. We are going to Vegas tomorrow for my sister’s 60th so that will keep T busy until Tuesday. Mostly I try to keep us busy before a scan. Last week he had his stent replacement for his right ureter. Now, he has done this 5 times this year and its a no brainer and yet in pre-op where they know him, they remarked that he was very uptight this time. Best thing to do is roll with the punches and stay strong and have hope!

    in reply to: Taxotere next on the list #29399
    lainy
    Spectator

    Leave it to you to find one that I can’t pronounce! They make some really cute wigs today. Hope it works good. When is your next scan?

    in reply to: Haven’t been here for awhile but need to talk #27590
    lainy
    Spectator

    Hi Charlene. I am so hurting for you and wish there was something we could do. I do not know that pain yet but realistically know its down the road and hoping that road is long rather than short. I do have some suggestions just from me. I am not a professional in any way but proud of my logic for having graduated from the school of hard knocks. First off could you take in a border? It would help financially and also provide you with someone in the house. Teddy is my second marriage and really stepped up to the plate where the children and grand children are concerned. They do not view him any other way. If your children didn’t feel that close to their step father it is not the point. The point is he was your husband and you will come out of the grief period when you are ready not when they think its more normal. My last suggestion is to call a family meeting at your house and just tell the kids where you are emotionally and financially. I believe the dream about John dying all over again had nothing to do with the past at all but with the guilt you must have felt selling your rings. Its just horrible to have to do that. Your kids and all family need to know what is going on. Perhaps it would help if you brought them into your life rather than excluding them and make them feel they can help. You don’t realize it but going back to work is a big step in itself. Hope you feel a little better soon and please feel free to vent here anytime.

    in reply to: Need advice #29342
    lainy
    Spectator

    Hi Daniellemarge, when you are settled back in Phoenix it would be great if the 4 of us could meet!!! We know all too well what a comfort it is to meet “one of us”.

    in reply to: new member #28690
    lainy
    Spectator

    Hi Eleanor, so happy to hear you are doing well. It does help to have a great daughter! I hope also you don’t loose your hair but it might be fun being a redhead then a blond then a brunette! And it sounds like you will NOT loose hope!

    in reply to: Help! 2 opinions #29359
    lainy
    Spectator

    Barbara, I definitely agree with Marion. When 2 disagree I would go to a third and if his opinion is different to a 4th until 2 agree. It is good that you have options and crucial to get 2 to agree. Good luck.

    in reply to: Need advice #29333
    lainy
    Spectator

    Oh, we have so many, I am sure Marion knows better than I but off the top of my head Mayo Clinic in Rochester Minnesota and MD Anderson in Texas. If I am right you could even fax or e mail information to them and perhaps they will consult with you that way. Not sure. I bet we will hear back from Marion!

    in reply to: Need advice #29330
    lainy
    Spectator

    Hi Liz and welcome to the best little club in the world that no one wishes to join. My husband is a Whipple survivor of 4 years now. The cancer returned last April where his duodenum used to be but we got it with radiation and cyberknife. I think our biggest rules on this board are to go with your gut feeling, be very aggressive (depends on age), get 2nd, 3rd, 4th opinions until you are totally satisfied. Below is a doctor who came on today and he did give his e mail address so he could help us. You might want to e mail him privately to just ask his advise. Be aggressive and hopeful!

    mahipal33 wrote:

    jamie thats what how the life is ., Sail in the waters smoothly no matter how the tides are . no matter how the deep waters are .we all are with or with out cc are sailing in most uncertainitis. take a postive decision. fill your soul with matrix of courage and spread happyness even in your deep sorrows amids yourself and around you . life and death are 2 cerainitis face it . me too is the victim of cc iam a doctor in gastroenterology had liver resection 14monts back not advised any chemo or radio . iam so busy involved in the practice i have no time to think myself . no body knows my disease except my wife . i dont want any sympathies . thats the way i live. funny is i myself diagnose about 3 malignancies in gastric and colonic area every day . the feelings u see in your patients and club ur own feelings . its horrible . but i will fight it out that way . dr mahipal at mahipal33@gmail.com

    in reply to: bad news as always #29320
    lainy
    Spectator

    Hi Deb. So sorry to hear what has happened. Unfortunately we always say the only thing we know for sure about CC is that we know nothing! Its heartbreaking and frustrating and you name it. Wish I could give you something medical and miraculous to lean on, but I can’t. Everyone is so different. We are up to almost 1,000 members and I bet only 4 -6 have been alike. Honestly swear, rant and rave like when you are alone in the car and it really does help. I put on MaMa Mia and sing like I’m on Broadway getting paid!
    Keep us posted and take some time for yourself as it really helps one to get through this.

    in reply to: Not a good scan #29316
    lainy
    Spectator

    Jamie, you go girl! Sounds like the truck may have hit you but you are now moving it out of the way so it doesn’t block traffic. I commend you for making the quick decisions to go forward. A medal of bravery is coming your way! Best of luck and I know we will behearing good news from you. Always, always there is hope.

    Dr. Mahipal, how good to hear from you and such wonderful words of comfort and wisdom. It must be so hard to see your patients and know full well what you are dealing with. We give no sympathies here only caring and love and all kinds of advise. Maybe we should write a book! You have a wonderful attitude and I am so glad you are able to keep on treating people with cancer.
    We need more doctors like you! Please keep us posted.

Viewing 15 posts - 9,286 through 9,300 (of 10,019 total)