ronidinkes
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Good Morning Madeline,
My mother stopped taking phone calls almost 6 weeks prior to her passing March 17th, 2012. In a way it prepped us for what was to come.
Somedays were good, and others were not.
Just try to enjoy the moments.
As Gavin said, it is a roller-coaster ride. I found at the end, I went to New York, and just held mom’s hand. I slept next to her. I talked to her, and played her favorite music.
It was the quiet moments with no pain, while watching her sleep or gently smile, that I fondly remember.
I am here if you need to talk or you can find me on facebook.
Sending many hugs and much love.
Regards,
Roni Dinkes
ronidinkes@yahoo.comDear Shlamoney,
Chemotherapy, radiation, and other treatments are a very individual decision.
My mother had the Whipple 8/2010. She was not interested in Chemotherapy. She has 6 weeks of radiation in 2/2011 and that was it. She survived 19.5 months and recently passed March 17, 2012.
You have to follow your gut, and whatever your heart tell you. My mother was very brave and stuck to her decisions. Not an easy thing in this day and age of medicine and options.
If you ever need to talk I am here. Trust yourself, enjoy the sunshine. Sending many hugs your way.
Love,
Roni Dinkes
ronidinkes@yahoo.comGood Morning Karen,
I think educating Physician’s on this disease is critical. As many lump in into either pancreatic cancer/ or liver cancer, and it is Bile Duct Cancer.
This are a few excellent educational tools:
http://www.msnbc.msn.com/id/39102353/ns/health-cancer/t/top-deadliest-cancers-why-theres-no-cure/
I find too often that patient’s wait too long for hospice services, and fear it. My mother recently passed on March 17th and she fought not to have hospice in November 2010. In fact she fired Hospice in the beginning.
However, when the pain became too much in Mid February we finally brought them in. Patient’s need to learn it is not surrendering but actually those in hospice often can have a better quality of life. Although, all hospice care does differ.
If I can be of any assistance please let me know.
Regards,
Roni DinkesMany do not understand you do not have to go to a facility but you can stay in your own home on your own terms. Physicians need to educate patients with regard to this option.
Dear Cericksen,
First and Foremost, you are an amazing daughter.
I recently lost my mother to her battle March 17. She made it 19.5 months and I was really proud of her. I am not sure about the asparagus, but if it is working and she does not mind, then go for it. I have a wonderful woman who helped me with my mother if you are interested?
I believe in something bigger, some spiritual being larger than us, and despite the pain you are going through, some how everything has a way of working out. I know my mother has passed physically, but I feel her with me, and interesting enough, I feel less lonely.
I am here if you ever need to talk. My email is ronidinkes@yahoo.com or you can find me on facebook.
Please stay in touch and know I am sending you tons of love and hugs,
Roni DinkesLaddie,
You are not a lone. My mother passed March 17th. She was a home, but in hospice none the less. She made it 5 weeks in home hospice. Enjoy your moments, make them count. I am here if you need to talk.
Hugs,
Roni
ronidinkes@yahoo.comDear Matt,
I have a wonderful woman who can help your sister after surgery and beyond. Her name is Linda, she is wonderful, she took 24/7 care of my mother until the end.
Her phone number is 443-310-0460.
She is honest, reliable and I love her. My mother loved her and my mother was one tough cookie!
My mother never went into hospice.
Hospice came to her, she wanted to pass at home with her dogs, in her own bed on her terms and Linda made that happen.
Linda has been with us since mom’s Whipple in August 2010, she is a gem of a find, and she is willing to travel.
Please feel free to call her, she is ready to help you!
Any questions you can call me at 443-465-9529
Good Luck,
RoniDear MyMomMyLife:
I am here if you ever need to talk. My mom just passed on 3-17. She was diagnosed August 2010.
I have a wonderful caregiver, Her name is Linda, she took 24/7 care of my mother until the end.
She respects the patient’s wishes and is now available.
Her phone number is 443-310-0460.
She is honest, reliable and I love her. My mother loved her and my mother was one tough cookie!
My mother never went into hospice. Hospice came to her, she wanted to pass at home with her dogs, in her own bed on her terms and Linda made that happen.
Good Luck and much love,
RoniLinda has been with us since mom’s Whipple in August 2010, she is a gem of a find, and she is willing to travel.
Please feel free to call her, she is ready to help you!
Any questions you can call me at 443-465-9529
You can have dad stay at home. My mother refused to leave the house. So we hired a woman 24/7 to live in, and we have hospice coming to the house as needed. You need not leave your home. Stay in touch and keep me posted on how you are, I am here day and night!
Hugs,
RoniDear Chrissy,
So sorry to hear about your loss.My mother is now in hospice at home. My heartfelt love and hugs go out to you. I am hear if you ever need to talk: ronidinkes@yahoo.com or you can find me on facebook.
This disease is truly a monster, and a horror show to watch destroy your loved one and family. My mother was diagnosed August 2010, and is living on borrowed time. I think is it is her stubborn nature, she is one tough new york cookie.
Please stay in touch and know you are not alone. This is a wonderful family full of support and love and we are here for you!
Hugs,
RoniI would honor Marina’s wishes. Life is short, and decisions are not easy. What is good for one is not good for someone else. My mother opted to have no chemotherapy at all. It destroyed me, but it was her body and her decision and I had to respect it. She is one tough cookie, and she did things her way, and I respect her strength and determination to stick to what she wanted and did not waiver.
Dear SugarPlumFairy,
I received my tickets when my mother was 65 as well. She had the whipple August 2010 and by the grace of g-d is still alive, she is in bed, 75 pounds and now on liquid morphine.
I feel your pain, I understand exactly what you are going through, and I am here if you need to talk. You can call me 443-394-6163 or you can email me at ronidinkes@yahoo.com or you can find me on facebook.
This disease is unique, rare, and I am watching it destroy my mother. It is devastating to watch, and it tears your heart apart. I also have kids, a 11 year old and a 13 year old who are coping with this horror as you put it perfectly.
It is wonderful he helped you paint your house, he is in everyone room. He will be forever in every part of your home and its beauty.
Stay in touch, please know you are NOT alone, we are here with all ears, love and tons of hugs!
Love,
Roni
