Posts by Cindy Thomas
Bright Spot Network
CCF would like to introduce you to Bright Spot Network as a resource. Bright Spot is focused on helping families through a cancer diagnosis. In October, they are offering support groups applicable to our community. The organization focuses on supporting parents facing a cancer diagnosis while also raising young children. Please note that CCF is…
Read MoreMonthly Scientific Update – March 2022
Carl Scheitrum spent more than 1,000 volunteer hours in 2021 updating the International Cholangiocarcinoma Patient Registry. Carl’s information technology experience played a crucial role in this project. He helped the CCF team explore the best approaches to make this registry platform more patient-friendly. He also focused on improving the registry output, so researchers can use…
Read MoreLong-Term Survivor Stories – Heidi Rhea
Heidi Rhea is a long-term survivor. She was diagnosed with cholangiocarcinoma almost 10 years ago. Heidi has always been a cancer advocate, especially with her family history of Lynch syndrome. Heidi is extremely passionate about her advocacy work. She talks about cholangiocarcinoma at every opportunity. Heidi has been a Cholangiocarcinoma Foundation ambassador at health fairs,…
Read More2022 Annual Conference T-Shirt Design Contest!
CCF is excited to announce the 2022 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.
Read MoreMusic Video/Lip Sync for the 2021 Annual Conference
CCF plans to have some fun during the conference! We are excited to announce our second annual Music Video Contest and this year’s winning song.
Read MoreLight It Green for Cholangiocarcinoma
Please help us participate in CCF’s Light It Green For CC project! We are excited to grow this campaign in 2021.
Read More2021 Annual Conference T-Shirt Design Contest!
CCF is excited to announce the 2021 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.
Read MoreHigh-Five for Volunteers
“Volunteers do not necessarily have the time, they have the heart.” Today CCF celebrates what volunteers do year-round. To our volunteers, you truly make an incredible difference in the work, and we thank you! Happy Volunteer Appreciation Week. Subscribe to our YouTube Channel Happy Volunteer Appreciation Week. You can join us in thanking our volunteers…
Read MoreVolunteer Appreciation Month!
Today CCF celebrates what volunteers do year-round. To our volunteers, you truly make an incredible difference in the work, and we thank you! Happy Volunteer Appreciation Month!
Read MoreOktoberfest 2019
On September 21, 2019 Heidi Rhea’s dream of having a successful and lively family friendly Oktoberfest celebration, in support of the Cholangiocarcinoma Foundation (CCF), came true. The 1,200 plus attendees surprised even Heidi herself. Heidi, a patient of cholangiocarcinoma, is also an active volunteer with CCF. She plays a crucial part in helping bring awareness…
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