Monthly Scientific Update – March 2022

Carl Scheitrum spent more than 1,000 volunteer hours in 2021 updating the International Cholangiocarcinoma Patient Registry. Carl’s information technology experience played a crucial role in this project. He helped the CCF team explore the best approaches to make this registry platform more patient-friendly. He also focused on improving the registry output, so researchers can use…

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Long-Term Survivor Stories – Heidi Rhea

Heidi Rhea is a long-term survivor. She was diagnosed with cholangiocarcinoma almost 10 years ago. Heidi has always been a cancer advocate, especially with her family history of Lynch syndrome. Heidi is extremely passionate about her advocacy work. She talks about cholangiocarcinoma at every opportunity. Heidi has been a Cholangiocarcinoma Foundation ambassador at health fairs,…

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High-Five for Volunteers

“Volunteers do not necessarily have the time, they have the heart.”  Today CCF celebrates what volunteers do year-round. To our volunteers, you truly make an incredible difference in the work, and we thank you! Happy Volunteer Appreciation Week. Subscribe to our YouTube Channel Happy Volunteer Appreciation Week. You can join us in thanking our volunteers…

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Volunteer Appreciation Month!

Today CCF celebrates what volunteers do year-round. To our volunteers, you truly make an incredible difference in the work, and we thank you! Happy Volunteer Appreciation Month!

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Oktoberfest 2019

On September 21, 2019 Heidi Rhea’s dream of having a successful and lively family friendly Oktoberfest celebration, in support of the Cholangiocarcinoma Foundation (CCF), came true. The 1,200 plus attendees surprised even Heidi herself. Heidi, a patient of cholangiocarcinoma, is also an active volunteer with CCF. She plays a crucial part in helping bring awareness…

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