lisa

Forum Replies Created

Viewing 15 posts - 1 through 15 (of 656 total)
  • Author
    Posts
  • in reply to: Nearly four years survivorship #51617
    lisa
    Member

    Ask away! In March 2008 a surgeon in Seattle attempted a resection of the tumor or partial resection of the liver. Unfortunately, the tumor was wrapped around the inferior vena cava, so it was considered inoperable.

    I am now in hospice care, and it is a good thing. I get bi-weekly visits from a massage therapist, nurse, and social worker. They are very helpful to see to my needs. I’m still living at home with my adult children, so they can help out where needed. Really, life goes on and I feel the same. Except tired and swollen. I just don’t like my puffy face from the steriods! Today I got a hair trim to even up the flyaway strands. I’m going to try a little mousse to see what happens :)

    in reply to: Nearly four years survivorship #51613
    lisa
    Member

    Hi all – well I am still alive and kicking. I was diagnosed August 15, 2007. Everyone is stunned that I’ve been fighting this cancer for four years now. All I can say is that God isn’t done with me yet. I continue in reasonably good health, although I do get tired easily.

    There is Hope!

    Love to all,
    Lisa

    in reply to: Marc Mecklenburg #51954
    lisa
    Member

    I just learned about Marc’s passing. I am so very sorry for your loss. I feel priviledged to have met you and Marc last September. What a wonderful couple you made. May God be with you as you navigate these uncharted waters with the love and support of your friends and family. As always, Jeff, you are in my prayers.

    in reply to: Okay, how do I answer the questions? #50194
    lisa
    Member

    Hey Charlotte, we should meet at the casino. It’s 10 minutes from where I live. I could use a little angel luck, too!

    Hope you’re feeling better.

    in reply to: Rick Kamp has gone home #49795
    lisa
    Member

    Rick & Cindy touched many of us on this board with their faith and courage. I know that he is with Jesus now and in a better place. Deepest condolences and prayers for you Ken and for Cindy and the children. I know he will live forever in your hearts. God bless you.

    in reply to: People who just don’t get it #49144
    lisa
    Member

    You really do know who your friends and family are.

    At first I felt guilty that I hadn’t died quickly enough before they ran out of sympathy. Then I found friends I hadn’t heard or seen from in many years so that was a blessing. I understand how hard it is to visit someone with a terminal illness. What do you say? as for myself I would rather talk about the other than myself and my boring life :)

    in reply to: My beloved Barry passed away. #47153
    lisa
    Member

    I am so sorry for your loss. May God bless you and the children and may he be with you in this time of grief.

    in reply to: Question for patients #48103
    lisa
    Member

    I agree with those other comments. This is what has gotten me through the past 3 1/2 years:
    God, prayer, church friends and family
    Focusing on the positive and choosing the positive every day.
    Allowing myself some times of feeling bad, then choosing life once again.
    Don’t think I’m dying of cancer, I am living with cancer.
    If in pain, don’t wait and let the pain get worse, take something for it right away so you can function.

    My kids (18, 22, 24) have known all along the diagnosis and prognosis. I keep them updated on every CT scan. My 18 year old daughter has choosen to fight cancer by being the Captain of a Relay for Life team.
    This gives her a concrete sense of doing something positive in the fight for a cure.

    in reply to: Dave’s Journey is over #47859
    lisa
    Member

    I’m so sorry to hear of your loss. Prayers for Dave, may he rest in peace. Prayers for your comfort and consolation especially for Mayce. God bless you.

    in reply to: Mission Update on Hospice #47613
    lisa
    Member

    you sound like Ali Reynolds in one of J.A. Jance’s detective novels. You go, girl!

    in reply to: Remembering John Ur #47539
    lisa
    Member

    Great idea!

    My future son in law’s birthday is on St. Patrick’s Day, too.

    in reply to: My Beloved #47415
    lisa
    Member

    I’m so sorry to hear of Randy’s passing but glad that he is in the arms of Jesus and not suffering anymore. God bless you and your family.

    in reply to: Bad bad news from Mayo #47383
    lisa
    Member

    I am so, so sorry to hear this news. I hope that you will be made more comfortable. I pray for you and Cindy every day. May God be with you both and give you strength.

    in reply to: “I just want to touch the sky” #47234
    lisa
    Member

    In the Civil War, a common imagery of death and afterlife was that of “crossing the river”. Stonewall Jackson’s last words were, “Let us go across the river and rest beneath the shade of the trees”.

    I think that is a touching sentiment.

    in reply to: The financial aspects of cancer diagnosis… #47019
    lisa
    Member

    Melanie, cc has been financially devastating for me. I’m a single parent with three kids in college. I cannot work. I’m on disability. I had to file for bankruptcy last year and almost lost my house. I am trying hard just to keep a roof over our heads. My kids have crappy jobs and can’t help financially. Its hard to deal with cancer at the same time that you’re just trying to put food on table. I hope things work out for you.

Viewing 15 posts - 1 through 15 (of 656 total)
©2019 - All Rights Reserved, Cholangiocarcinoma Foundation