Cholangiocarcinoma Foundation's Calendar of Events
unless otherwise stated, all times are in Eastern Time.
Events in July 2020
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Patient Support Group Webinar
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Patient Support Group Webinar
Please join us for a Patient Only Support Group led by Melinda Bachini, 4pm-5pm (EDT). This session is not recorded and is intended as a safe open forum. Patients only, please.
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Moving for the Cure
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Moving for the Cure
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Moving for the Cure
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Moving for the Cure
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Moving for the CureWebinar: Patient Health Data Rights & Privacy
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Webinar: Patient Health Data Rights & Privacy
Date & Time: Thursday, July 9 from 4-5 PM EDT
How to Join: https://cholangiocarcinoma-org.zoom.us/webinar/register/2915887867243/WN_x_1qAIgiRSm6CDDJRSf6QQ
Do you have questions about your health data privacy and your rights to access your own medical records? Join us for an educational webinar with health privacy and security expert Deven McGraw, who is Ciitizen’s Chief Regulatory Officer.
Deven previously directed U.S. health privacy and security as Deputy Director, Health Information Privacy at the HHS Office for Civil Rights and Chief Privacy Officer (Acting) of the Office of the National Coordinator for Health IT. Widely recognized for her expertise in health privacy, she directed the Health Privacy Project at the Center for Democracy & Technology for six years and led the privacy and security policy work for the HITECH Health IT Policy Committee. She also served as the Chief Operating Officer of the National Partnership for Women and Families. She advised health industry clients on HIPAA compliance and data governance while a partner at Manatt, Phelps & Phillips, LLP.
During the webinar, Deven will discuss your rights to access your own health data as a patient, and she will answer all of your questions about medical record access and how you can securely collect and organize your health records with Ciitizen.
Virtual Ciitizen Onboarding Party–
Virtual Ciitizen Onboarding Party
Date & Time: Thursday, July 9 from 5-6 PM EDT
How to Join: Register here: https://cholangiocarcinoma-org.zoom.us/webinar/register/4815887867301/WN_edJ7iOuhR8e11JzzVIxvPQ
What to Bring: Yourself, your favorite party snack / beverage and your driver’s license. That’s all you need to request your records with Ciitizen!
Join us for a virtual onboarding event with our partners at Ciitizen to learn how you can use Ciitizen’s platform to take control of your medical data and contribute to important medical research for cholangiocarcinoma. The onboarding party will show you an easy way to take control of your health data and contribute to important research.
CCF and Ciitizen are partnering to give cholangiocarcinoma patients an easy way to collect and organize their complete health history, free of charge. CCF and Ciitizen recently launched the #MapItForward Real World Genomics Study to allow patients like you to contribute your health records to research and advance our understanding of cholangiocarcinoma. Join us for the virtual onboarding party to learn what it’s all about!
Already have a Ciitizen account? You’re still welcome! Join the virtual onboarding party to learn more about Ciitizen and the Real World Genomics Study, or invite a friend to join.
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Moving for the Cure
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Moving for the Cure
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Caregiver Support Group Webinar
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Caregiver Support Group Webinar
Please join us for a Caregiver Only Support Group led by Katie Glenn, 4pm-5pm (EDT). This session is not recorded and is intended as a safe open forum. Caergivers only, please.
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CCF Annual Conference
CCF Annual Conference
Our online conference format will allow patients, caregivers, scientists, researchers, and healthcare providers from around the globe to convene without traveling to Salt Lake City. The event will continue to be the premier source for the presentation of cutting-edge research, innovative therapies, and patient education in the field of cholangiocarcinoma.
Registration is required. If you previously registered for the conference, you will need to re-register to access our new platform.
Your registration will give you access to conference materials and recordings as well as raffle tickets. The first 500 patients/caregivers registered (one per household) will receive a goodie bag packed with fun swag.
Thanks to the generosity of our sponsors, we are able to make this virtual conference and its recordings free for registered participants.
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CCF Annual Conference
CCF Annual Conference
Our online conference format will allow patients, caregivers, scientists, researchers, and healthcare providers from around the globe to convene without traveling to Salt Lake City. The event will continue to be the premier source for the presentation of cutting-edge research, innovative therapies, and patient education in the field of cholangiocarcinoma.
Registration is required. If you previously registered for the conference, you will need to re-register to access our new platform.
Your registration will give you access to conference materials and recordings as well as raffle tickets. The first 500 patients/caregivers registered (one per household) will receive a goodie bag packed with fun swag.
Thanks to the generosity of our sponsors, we are able to make this virtual conference and its recordings free for registered participants.
-
CCF Annual Conference
CCF Annual Conference
Our online conference format will allow patients, caregivers, scientists, researchers, and healthcare providers from around the globe to convene without traveling to Salt Lake City. The event will continue to be the premier source for the presentation of cutting-edge research, innovative therapies, and patient education in the field of cholangiocarcinoma.
Registration is required. If you previously registered for the conference, you will need to re-register to access our new platform.
Your registration will give you access to conference materials and recordings as well as raffle tickets. The first 500 patients/caregivers registered (one per household) will receive a goodie bag packed with fun swag.
Thanks to the generosity of our sponsors, we are able to make this virtual conference and its recordings free for registered participants.
