The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!
We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.
The woman who forgot today
We should, I thought, be compatriots: brothers-in-arms who’d lost their loved-one to an unfair, unlikely illness. What were chances that I’d come from South Africa to Italy only to stumble across someone who’d lost her husband to the same rare cancer my son succumbed to? I was even more astonished to discover we’d shared the same oncology team.
Five for Friday – 5 Resources to Help Navigate Depression.
During our 2020 Annual conference, Incyte shared the results from a 700 patient survey. The survey found that the quality of life for patients with cholangiocarcinoma is heavily impacted by a host of symptoms and side effects, including depression that may be severe.
This week we’d like to offer 5 reliable resources to help navigate through depression.
Five for Friday – 5 Events to Add to Your Calendar
We have some amazing events planned in the future that you’re going to want to be a part of. Whatever your personality or interest there is something for you.
This week we are sharing 5 upcoming events that you’ll want to add to your calendar.
Moving for the Cure Recap
TeamCCF and the Cholangiocarcinoma Foundation held its first-ever virtual athletic fundraising event, Moving for the Cure, the week of July 5th. “With Covid-19 restrictions in…
Five for Friday – 5 tips on how to get behind Biomarkers Matter
Cholangiocarcinoma Foundation (CCF) is a proud member of The Working Consistent Group. Together with 41 other advocacy organizations, we committed to clarifying and promoting consistent use of common terms for biomarker and germline genetic testing.
Webinar: “Should I get a second opinion?”
The first diagnosis isn’t always correct or complete. According to a study by the Mayo Clinic, 88% of original diagnoses were changed or refined by a second opinion.
Five for Friday – 5 fundraising events
We are SO thankful for all of our volunteers who work tirelessly to support CCF in any way they can. “One of the greatest gifts you can give is your time.” This week we would like to highlight 5 events that our amazing volunteers put together.
Five for Friday – 5 highlights from the Annual Conference
Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.
Our 2020 Annual Conference was unforgettable! We would like to extend our sincerest thanks to all those who joined us online during the 2020 Virtual Annual Conference. Over 1,600 individuals from 49 states and 44 countries registered, which is 3x more than our previous conference!
During the conference, we presented exciting new research collaborations, programs, and more crucial information that will continue to move us toward better treatment options for patients.
If you missed it, we’d like to share 5 highlights from the conference.
The 2020 Annual Conference was a Success!
We would like to extend our sincerest thanks to all those who joined us online during the 2020 Virtual Annual Conference on July 22-24th. More…
Five for Friday – 5 ways you can join Annual Conference fun
Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.
CCF’s Annual Conference has gone virtual, that means EVERYONE can attend!
In preparation, we’d like to share 5 things to do before the conference.
Webinar: Virtual Ciitizen Onboarding Party
Join us for a virtual onboarding event with our partners at Ciitizen to learn how you can use Ciitizen’s platform to take control of your medical data and contribute to important medical research for cholangiocarcinoma.
Webinar: Patient Health Data Rights & Privacy
Subscribe to our YouTube Channel Do you have questions about your health data privacy and your rights to access your own medical records? Join us…