Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

Get connected

By Sarah Bennett | November 30, 2015

Cancer is a scary word. Cholangiocarcinoma is an even scarier word. What makes it better is finding other people affected by Cholangiocarcinoma. It’s no easy…

Don’t listen to the statistics.

By Sarah Bennett | October 18, 2015

Awhile ago I asked a group of people and not just ordinary people but cholangiocarcinoma fighters, what’s one piece of advice you’d give about anything…

A Story of Hope

By Sarah Bennett | September 13, 2015

I was asked by the Foundation to share this story. I was more than happy to. It’s an incredible story and full of inspiration. I…

1 year later and treatment woes.

By Sarah Bennett | August 16, 2015

On August 4, 2015, I celebrated my one year anniversary of being “cancer free” or NED (no evidence of disease) as my doctor says. It…

Did that just happen?

By Sarah Bennett | July 20, 2015

I have re-written the first sentence of post three times now. Why is it so hard to get what’s in my head down to my…

I want off this roller coaster.

By Sarah Bennett | June 30, 2015

Here I am staring at a blank screen wondering what to type or where to start. Let’s start simple. My name is Sarah and I’m 31…

Webinar: The Emerging Role of Radiation for Intrahepatic Cholangiocarcinoma: Higher Doses Lead to Improved Survival

By Rick Pollock | June 21, 2015

This presentation focused on the non-operative treatment of intrahepatic cholangiocarcinoma. Over the past 5 years, new technology has allowed much higher doses of radiation to…

Webinar: Photodynamic Therapy, A Ray of Light in Cholangiocarcinoma: The OPUS Trial

By Rick Pollock | May 10, 2015

“Photodynamic Therapy, A Ray of Light in Cholangiocarcinoma: The OPUS Trial” presented by Dr. David E. Loren, Associate Director of Endoscopy and Co-Director of the…

Bill Merriam in the premiere issue of Beating Cancer

By Rick Pollock | March 11, 2015

Long-distance runner Bill Merriam’s diagnosis of cholangiocarcinoma never slowed him down. Bill is featured in the premiere issue of Beating Cancer, a new online magazine…

The Three Types of Cholangiocarcinoma and How to Treat Them

By Rick Pollock | February 17, 2015

Sumera H. Rizvi, MBBS, a fellow in the division of Gastroenterology and Hepatology at Mayo Clinic, Rochester, discusses the three types of cholangiocarcinoma (bile duct…

Andrea Remembered

By Rick Pollock | January 22, 2015

Fundraiser Spotlight: Andrea Remembered On January 10th, AndreaRemembered.org held the fourth annual “Andrea’s Night at the Discovery Lodge”. More than 500 people were in attendance…

Surgical Management of Cholangiocarcinoma – State of the Art and Beyond

By Rick Pollock | November 3, 2014

Title: Surgical Management of Cholangiocarcinoma – State of the Art and Beyond When:Thursday, Nov 13, 2014,  3:00 PM – 4:00 PM EST Presented by: Dr. Tomoaki…