Posts Tagged ‘cholangiocarcinoma’
Man runs a marathon each month in honor of his wife, who has been diagnosed with rare bile duct cancer twice
Delorean Ostrom’s ‘Racing for Hope’ campaign raises funds to advance cholangiocarcinoma research with proceeds benefiting the Cholangiocarcinoma Foundation SALT LAKE CITY, UT – Delorean Ostrom of Suwanee, GA, and his family’s life changed when his wife, Mandy, was diagnosed with a rare bile duct cancer called cholangiocarcinoma. To pay tribute to her, Ostrom is running…
Read MoreGovernor’s Signature Brings Awareness to Rare Cancer
COLUMBUS – Ohio Governor Mike DeWine signed into law this morning House Bill 537, legislation sponsored by State Representative Cindy Abrams (R-Harrison) to designate February 12 as Cholangiocarcinoma (pronounced koh-LAN-jee-oh-KAR-sih-NOH-muh) Awareness Day. “I’m proud to sponsor this important legislation. With more awareness, we hope to give patients and medical providers the foresight to catch this…
Read MoreHappy Retirement to Donna Mayer
The Cholangiocarcinoma Foundation announces the retirement of Donna Mayer. Donna worked tirelessly to help build CCF into a trusted, global source of cholangiocarcinoma information and resources. Her work on the CCF annual conference and research fellowship programs was exceptional and helped to extend the work of CCF across the globe. For nearly a decade, Donna led programs and developed policies that increased awareness about…
Read MoreBill recognizing Cholangiocarcinoma Awareness Day clears Ohio Senate, heads to governor
Rep. Cindy Abrams (R-Harrison) The Cholangiocarcinoma Foundation congratulates Rep. Cindy Abrams (R-Harrison) and the Ohio legislature for the passage of House Bill 537. The legislation sponsored by Abrams designating February 12 as Cholangiocarcinoma Awareness Day unanimously passed the House Health Committee, Senate Health Committee and the Ohio House. On Wednesday, the bill was also favorably…
Read MoreVietnam veterans with cholangiocarcinoma get help filing claims with the VA in commemoration of Veterans Day
Navigating how to file claims with Veterans Affairs can be daunting when diagnosed with a rare disease such as cholangiocarcinoma (bile duct cancer).
Read More