The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation. Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!
We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon at firstname.lastname@example.org.
In anticipation of National Cancer Survivors Day on June 6th, we would like to recognize several friends of the foundation who have been willing to share their survivor stories.
I don’t want to jinx myself, however, the Journey just keeps getting more meaningful to me by the day! Now I’m starting to think how can it be possible that I only have 9,375 miles to go?!
Remember the movie Cast Away starring Tom Hanks and his companion Wilson, the soccer ball? Well, I had one of those episodes today, when Mike O’Langio my Mutations Matter photo bud seemed to have disappeared.
TeamCCF would like to take this opportunity to engage those who want to fundraise for the Foundation in a fun and positive way with a fitness component.
What an inspiring day! My first stop this morning was in Akron, OH, where I was met by a “sea of green” at the home of Lisa (warrior and mentor) and David Craine.
I have to admit, this was a long day. As I planned the journey, I knew that was going to be the case, however, I didn’t plan on the hotel story at the end of the day.
Wow, another eventful day! The day started with me dropping Linda off at O’Hare Airport for her journey home to NJ, so as to be with our grandson, Austin, this week for “bus duty”.
It was a beautiful, cool, cloudless morning when Linda and I departed Rochester, MN, today. Our first official stop was about 275 miles away, fairly close to Milwaukee.
Departing from Watertown, SD, we headed in a southeasterly direction to Hope, MN., over a variety of roads, including interstates, two-lane state and county roads, plus an added bonus of dirt! It’s amazing what supposed shortcuts GPS will produce at times!
CCF Celebrates FDA Approval of TRUSELTIQ™ for Cholangiocarcinoma Patients Developed by BridgeBio Pharma Affiliate QED Therapeutics
This is an important milestone for this community and specifically for patients with CCA harboring an FGFR2-fusion.
Our social media platforms allow us to tell your stories. Messages can help increase awareness, promote programs and initiatives and spread the word about our mission.
As we departed Dickinson, ND, this morning, we were greeted with a windy 35°, and snow showers! Quite a difference for those in New England talking about how hot it is at 90°. Driving east on I-94 our first stop was to see Salem Sue, the world’s largest Holstein cow!