Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Shaun Hope: ‘It Could Be Worse’

By Allison Deragon | August 23, 2021

Shaun Hope was diagnosed with extrahepatic cholangiocarcinoma in August 2019. He faced his diagnosis with courage and his famous mantra, “It could be worse.” Shaun…

CholangioConnect Mentee Testimonials – Rob Howard

By Cholangiocarcinoma Foundation | August 23, 2021

Within hours of my dad’s cholangiocarcinoma diagnosis, I was online doing research trying to learn about this type of cancer. I soon found my way to the comforting and informative website for the Cholangiocarcinoma Foundation.

Five for Friday – 5 CCA Survivor Stories

By Allison Deragon | August 20, 2021

In anticipation of our upcoming Newly Diagnosed program, we would like to recognize several friends of the Foundation who have been willing to share their survivor stories.

Team Sarah Newton

By Meredith McGuffage | August 20, 2021

Sarah Newton of Galena, Illinois has been dealing with bile duct cancer since her diagnosis in July 2020. She has endured four-plus months of chemo, two procedures involving implanting Y90 in both lobes of her liver and is currently taking gene therapy medication.

2nd Annual Moving for the Cure Recap

By Meredith McGuffage | August 20, 2021

TeamCCF sponsored its 2nd Annual Moving for the Cure, July 18 – 24. Families and individuals accepted the challenge to raise at least $200 and perform any physical movement during that week in July. In the end, the Moving for the Cure participants and sponsors raised more than $96,000!

Cholangiocarcinoma Foundation raises more than $76,000 in 2nd Annual Moving for the Cure

By Allison Deragon | August 17, 2021

The Cholangiocarcinoma Foundation (CCF) and TeamCCF sponsored its second athletic event, Moving for the Cure. The virtual fundraiser invited participants from around the world, of any age, and of any physical ability to raise money through an athletic event of their choosing.

2022 Annual Conference T-Shirt Design Contest!

By Cindy Thomas | August 17, 2021

CCF is excited to announce the 2022 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.

Five for Friday – 5 Clinical Trial Categories

By Allison Deragon | August 13, 2021

A cholangiocarcinoma (CCA) diagnosis can be overwhelming when you have the burden of figuring out what treatment options are best for you.

Bidding for the Cure

By Cholangiocarcinoma Foundation | August 10, 2021

Help fund research that will move us closer to a cure. To celebrate the Cholangiocarcinoma Foundation’s 15th Anniversary, and to support our volunteer committee’s pledge…

Five for Friday – 5 Webinars You Can Watch Online

By Allison Deragon | August 6, 2021

Did you know that all educational webinars are recorded and added to CCF’s YouTube Channel?

Five for Friday – 5 Ways You Can Support CholangioConnect

By Allison Deragon | July 23, 2021

It’s time to celebrate! July 2021 marks the creation of the 500th mentor/mentee relationship with CholangioConnect since its beginning in July of 2017.

Whispers Over My Shoulder

By Cholangiocarcinoma Foundation | July 16, 2021

When I interviewed for my current post as a first-time consultant in medical oncology in the United Kingdom, I was asked about my 5-year career plan.…