Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Cholangiocarcinoma Foundation Launches Trusted Partners Program

By Allison Deragon | January 18, 2021

Collaboration is a core value at CCF and is fundamental to the Foundation’s growth and ability to provide high-quality programs and services to the CCA community.

Five for Friday – 5 reasons why you should participate in research with Ciitizen

By Allison Deragon | January 15, 2021

You are the future of research, and we want you to know that your validated data matters. When you request your health records and share your data with Ciitizen, you are helping us find a cure for cholangiocarcinoma (CCA).

Five for Friday – 5 events to add to your calendar as we begin the new year

By Allison Deragon | January 8, 2021

We hope you had a Happy New Year! Exciting things are happening at Cholangiocarcinoma Foundation (CCF) this year, including celebrating our 15th Anniversary and more.

Light It Green for Cholangiocarcinoma

By Cindy Thomas | January 8, 2021

Please help us participate in CCF’s Light It Green For CC project! We are excited to grow this campaign in 2021.

Patient Highlight – Bekki Slater

By Jordan Giles | December 30, 2020

I am a 40 year old mother of two, Grace (9) and Connor (7). I am incredibly lucky to be married to my best friend and love of my life Jason, who is the pillar of our family.

Eat to Beat Disease

By Kathy Pifer | December 23, 2020

“Let food by thy medicine and let medicine be thy food”.  Hippocrates is thought to be the source of this quote, but Dr. William Li,…

Longterm Patient Highlight – Matt Reidy

By Jordan Giles | December 23, 2020

Matt Reidy was diagnosed in 2013 with stage II perihilar CC. Matt is from Richmond, VA, is married with 4 children ages 12-25. Matt is a retired IT Executive and enjoys wood. working, sailing, water sports.

Five for Friday – 5 impactful ways you can make a year-end gift

By Allison Deragon | December 18, 2020

As 2020 comes to a close, there are a number of opportunities to support the work of the Cholangiocarcinoma Foundation. Your Year-End Giving can make a long-term impact.

Cholangiocarcinoma Foundation Receives a $500,000 Gift, the Largest in its History, from the Scott Family in Memory of Andrea Scott

By Laura Hnat | December 18, 2020

The Cholangiocarcinoma Foundation (CCF) received a gift of $500,000, the largest in its history, from The Scott Family, in memory of wife and mother, Andrea (Breuhan) Scott, who lost her courageous 18-month battle with the disease in 2014.

Longterm Patient Highlight – Tom Leitzke

By Jordan Giles | December 15, 2020

My name is Tom Leitzke. I was born and raised in Sandusky, Ohio, and was living as an expatriate in Japan, managing global operations for a publicly-traded robotics company when I was diagnosed with perihilar cholangiocarcinoma (stage 3B) in 2007. I was 58.

Five for Friday – 5 ways you can get involved with the 2021 Annual Conference

By Allison Deragon | December 11, 2020

There is a lot of planning that goes on behind the scenes and we are working hard to make it the best conference yet. This week we are sharing 5 ways you can get involved with the 2021 Annual Conference now.

2021 Annual Conference T-Shirt Design Contest!

By Cindy Thomas | December 11, 2020

CCF is excited to announce the 2021 Annual Conference t-shirt logo contest. CCF is now accepting logo proposals for t-shirts, which will be introduced for the Annual Conference.