Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

Long-Term Survivor Stories – Matt Reidy

By Cholangiocarcinoma Foundation | November 23, 2021

Hello. I’m Matt Reidy. I live in Richmond, VA. I’m a retired IT executive. I’m also married with four children, now age 12 through 25.…

Mandy’s Perspective

By Mandy Delorean | November 21, 2021

This is my first entry. I was hoping to write an entry here and there to give a different perspective, a patient’s perspective.  I was…

Five for Friday – 5 ways to prepare for the conference

By Cholangiocarcinoma Foundation | November 19, 2021

Home / Blog / Registration for the 9th Annual Cholangiocarcinoma Foundation Conference is open! The annual conference takes place the week of Feb. 23-25, 2022. Join more…

Racing for Hope Journal Entry 4

By Delorean Ostrom | November 17, 2021

Video Blog for Week 5

National Family Caregivers Month

By Allison Deragon | November 16, 2021

According to the National Alliance for Caregiving, an estimated 65.7 million Americans serve as family caregivers for an ill or disabled relative. Caregivers play an…

Long-Term Survivor Stories – Ellyn Goodrich

By Cholangiocarcinoma Foundation | November 16, 2021

MY STORY I am a patient and an advocate, but first, I am a mother to three amazing sons. I live in the Pacific Northwest…

Giving Tuesday 2021

By Cholangiocarcinoma Foundation | November 16, 2021

This year was an incredible success, because of you, we raised more than $150,000! Donations Last year on Giving Tuesday, people came together to raise…

Patient Scholarships for our 2022 Annual Conference

By Cholangiocarcinoma Foundation | November 12, 2021

It is with great pleasure the Cholangiocarcinoma Foundation announces it is giving patient scholarships for its 9th Annual Cholangiocarcinoma Foundation Conference taking place February 23-25,…

Five for Friday – 5 Caregiver Resources

By Jennifer Weaver | November 12, 2021

Home / Blog / Celebrated every November, National Family Caregivers Month (NFCM) is a time to recognize and honor family caregivers across the country. The…

Long-Term Survivor Stories – Arlene Dworetsky

By Cholangiocarcinoma Foundation | November 9, 2021

Hi, my name is Arlene Dworetsky. I’m from Glastonbury, CT, originally from Hartford, CT. I’m a retired public elementary school teacher with more than 30…

Five for Friday – 5 opportunities to share gratitude and give back

By Cholangiocarcinoma Foundation | November 5, 2021

As the holiday season approaches, we invite you to look for ways to show gratitude and give back to the CCF community.

Vietnam veterans with cholangiocarcinoma get help filing claims with the VA in commemoration of Veterans Day

By Cholangiocarcinoma Foundation | November 5, 2021

Navigating how to file claims with Veterans Affairs can be daunting when diagnosed with a rare disease such as cholangiocarcinoma (bile duct cancer).