Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements.  Contributors like patients Sarah Bennett, Cait Telaak, Helen Scott, Susan Braden, George Riddle, Lisa Layton, and Marcia Van Gorden share news and personal anecdotes, and the blog also serves as a resource for you to familiarize themselves with the Foundation.  Keep an eye out for new posts as together we explore the world of Cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news.  If you have something you'd like to share, please reach out to Allison Deragon at allison.deragon@cholangiocarcinoma.org.

Moving for the Cure Recap

By Meredith McGuffage | August 17, 2020

TeamCCF and the Cholangiocarcinoma Foundation held its first-ever virtual athletic fundraising event, Moving for the Cure, the week of July 5th.  “With Covid-19 restrictions in…

Five for Friday – 5 tips on how to get behind Biomarkers Matter

By Allison Deragon | August 14, 2020

Cholangiocarcinoma Foundation (CCF) is a proud member of The Working Consistent Group. Together with 41 other advocacy organizations, we committed to clarifying and promoting consistent use of common terms for biomarker and germline genetic testing.

Five for Friday – 5 fundraising events

By Allison Deragon | August 7, 2020

We are SO thankful for all of our volunteers who work tirelessly to support CCF in any way they can. “One of the greatest gifts you can give is your time.” This week we would like to highlight 5 events that our amazing volunteers put together.

Five for Friday – 5 highlights from the Annual Conference

By Allison Deragon | July 31, 2020

Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.

Our 2020 Annual Conference was unforgettable! We would like to extend our sincerest thanks to all those who joined us online during the 2020 Virtual Annual Conference. Over 1,600 individuals from 49 states and 44 countries registered, which is 3x more than our previous conference!

During the conference, we presented exciting new research collaborations, programs, and more crucial information that will continue to move us toward better treatment options for patients.

If you missed it, we’d like to share 5 highlights from the conference.

The 2020 Annual Conference was a Success!

By Allison Deragon | July 30, 2020

We would like to extend our sincerest thanks to all those who joined us online during the 2020 Virtual Annual Conference on July 22-24th. More…

Five for Friday – 5 ways you can join Annual Conference fun

By Rick Pollock | July 10, 2020

Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.

CCF’s Annual Conference has gone virtual, that means EVERYONE can attend!

In preparation, we’d like to share 5 things to do before the conference.

Cholangiocarcinoma Foundation Consortium Moves to Clarify and Promote Consistent Use of Common Terms for Biomarker and Germline Genetic Testing

By Allison Deragon | July 7, 2020

Improved Communication Is Vital Between Patients and Providers About Testing Needs WASHINGTON, DC (July 7, 2020) — A LUNGevity Foundation-led consortium of 41 leading patient…

Two webinars this week!

By Rick Pollock | July 6, 2020

Please join us this Thursday, July 9 for two events with our partners at Ciitizen! As part of the CCF Webinar Series, we will start with an educational…

Five for Friday – 5 things to do before the conference

By Allison Deragon | July 3, 2020

Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.

CCF’s Annual Conference has gone virtual, that means EVERYONE can attend!

In preparation, we’d like to share 5 things to do before the conference.

CCF is hosting a Lip Sync Battle!

By Rick Pollock | July 2, 2020

July is here, and the 2020 Cholangiocarcinoma Foundation’s Virtual Conference is just weeks away. CCF plans on having some fun during the conference! We’re excited…

Five for Friday – 5 ways you can win prizes at this year’s Annual Conference

By Allison Deragon | June 26, 2020

Each week, we’re going to offer five tips that will help you stay educated, informed and hopeful about all things cholangiocarcinoma.

CCF’s Annual Conference has gone virtual, that means EVERYONE can attend!

This week we present 5 ways you can win prizes at this year’s Annual Conference.

CCF Webinar Series : July’s Patient Support Group

By Rick Pollock | June 26, 2020

We’ve loved connecting with you each week and hope you’ll continue to do so. Our Weekly Webinars provide our CCF community with the latest information and updates…