Our Blog...Cholangio-what??

The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

Trials, Targeted Agents Often Lead to Financial Toxicity From CCA

By Cholangiocarcinoma Foundation | July 29, 2022

Clinical trials and targeted agents do not appear to affect health care-related quality of life, however. July 27, 2022 — People with cholangiocarcinoma (CCA) who enroll…

Racing for Hope Journal Entry 18

By Delorean Ostrom | July 28, 2022

Mandy texted me the cancer is back…

Journey to Complete the Journey

By Meredith McGuffage | July 8, 2022

Cold showers daily for two years Ice baths lasting 10-15 minutes a few times a week Swim 4-5 days a week, two-mile intervals during the…

Social Security Disability Insurance Benefits

By Lourdes Rocha-Nussbaum | July 8, 2022

Cholangiocarcinoma patients in the United States can apply for Social Security Disability Insurance (SSDI) benefits on the Social Security website via the compassionate allowances program.…

Monthly Scientific Update – July 2022 (Clinical, Genomic, and Transcriptomic Data Profiling of Biliary Tract Cancer Reveals Subtype-Specific Immune Signatures)

By Cholangiocarcinoma Foundation | July 1, 2022

Kelly Butler, Dr. Reham Abdel-Wahab A recent study in Precision Oncology examined the diverse genetic and molecular profiles of biliary tract cancers (BTCs). With an…

Governor’s Signature Brings Awareness to Rare Cancer

By Jennifer Weaver | June 24, 2022

COLUMBUS – Ohio Governor Mike DeWine signed into law this morning House Bill 537, legislation sponsored by State Representative Cindy Abrams (R-Harrison) to designate February…

🤚🏻 Five for Friday – 5 Ways to Support 21 Miles of Hope

By Jennifer Weaver | June 24, 2022

Home / Blog / In 2016, Jonathan Whiting lost his wife, Lori, to cholangiocarcinoma (CCA). He is swimming across the English Channel in July to…

Global patient registry to expand cholangiocarcinoma knowledge worldwide offered by Cholangiocarcinoma Foundation in partnership with Invitae

By Jennifer Weaver | June 23, 2022

Global patient registry to expand cholangiocarcinoma knowledge worldwide offered by Cholangiocarcinoma Foundation in partnership with Invitae  The Cholangiocarcinoma Foundation (CCF) in partnership with Invitae has…

Racing for Hope Journal Entry 17

By Delorean Ostrom | June 22, 2022

It’s been 4 days since I completed the Grandma’s marathon in Duluth, MN. The race wasn’t my fastest, and I really had to get through…

5 Trials at ASCO 2022

By Reham Abdel-Wahab | June 17, 2022

Home / Blog / The American Society of Clinical Oncology (ASCO) meeting took place in Chicago the first week of June. The Foundation provided an…

Happy Retirement to Donna Mayer

By Jennifer Weaver | June 14, 2022

The Cholangiocarcinoma Foundation announces the retirement of Donna Mayer. Donna worked tirelessly to help build CCF into a trusted, global source of cholangiocarcinoma information and…

🤚🏻 Five for Friday – 5 CholangioConnect Resources

By Allison Deragon | June 10, 2022

Home / Blog / Through peer-to-peer mentorship with a fellow patient or caregiver, CholangioConnect is creating a community of hope. Please consider becoming a mentor and making…