The Cholangiocarcinoma Foundation’s Blog has been home to a variety of content ranging from patient perspectives to updates on medical advancements. Contributors like patients Christy Landon and Bekki Slater, along with caregivers Dave Fleischer and Jessica Thomas, share news and personal anecdotes. The blog serves as a resource to get familiar with the work of the Foundation. Keep an eye out for new posts as together we explore the world of cholangiocarcinoma and the tireless work towards a cure!

We're always looking to share good news. If you have something you'd like to share, please reach out to Allison Deragon.

Racing for Hope Journal Entry 21

By Delorean Ostrom | September 30, 2022

When I got this idea to run a marathon a month, I knew it would be hard. I really underestimated the mental side of it. Training…

Patients, Caregivers Share Why They Participated in ICPR

By Cholangiocarcinoma Foundation | September 30, 2022

Cholangiocarcinoma patients are eager to contribute to science and accelerate research because of this newly approved FDA process and share their experience enrolling in the…

Collaborative Research Groups

By Allison Deragon | September 22, 2022

CCF has formed collaborative groups that work to achieve its mission to find a cure and improve the quality of life for cholangiocarcinoma patients. Each…

Racing for Hope Journal Entry 20

By Delorean Ostrom | September 12, 2022

Monday, September 12th, 2022 Mandy is having surgery to remove lymph nodes that are of concern. Walking into the hospital is never easy but for…

New standard of care for rare cancer with FDA approval of Imfinzi applauded by Cholangiocarcinoma Foundation

By Cholangiocarcinoma Foundation | September 5, 2022

AstraZeneca TOPAZ-1 Phase III trial showed adding immunotherapy to standard chemotherapy increases overall survival in advanced biliary tract cancer The Cholangiocarcinoma Foundation (CCF) applauds the…

Monthly Scientific Update – September 2022 (Precision Therapeutics for Intrahepatic Cholangiocarcinoma)

By Cholangiocarcinoma Foundation | September 1, 2022

Kelly Butler, Dr. Reham Abdel-Wahab The traditional chemotherapies gemcitabine and cisplatin have several side effects and have been used to treat cholangiocarcinoma for decades. However,…

Monthly Scientific Update – September 2022 (Can bacteria help fight cancer?)

By Cholangiocarcinoma Foundation | September 1, 2022

George Riddle, Dr. Reham Abdel-Wahab Bacteria live in our guts – in all of us. Some of them are good; some are not. Some of…

2022 University of Chicago Regional Symposium

By Cholangiocarcinoma Foundation | August 31, 2022

Join us for a day dedicated to the science of cholangiocarcinoma. The symposium includes presentations from University of Chicago clinicians in the field of cholangiocarcinoma.…

3rd Annual Moving for the Cure Recap

By Meredith McGuffage | August 25, 2022

Thank you to everyone who helped make TeamCCF’s 3rd Annual Moving for the Cure (M4C) a success! Each M4C participant elected to complete any athletic…

🤚🏻 Five for Friday – 5 Questions to Ask Your Doctor About Biomarker Testing + 2 Biomarker Stories

By Jennifer Weaver | August 12, 2022

Home / Blog / Knowing what to ask your doctor after a cholangiocarcinoma diagnosis isn’t always easy. CCF is here to help with five questions…

Racing for Hope Journal Entry 19

By Delorean Ostrom | August 9, 2022

So marathon 8 was not a fun run! If you watched my last recap, you know that Mandy’s cancer is back and I hadn’t trained…

Long-Term Survivor Stories – Grace

By Grace | August 2, 2022

It started as an itch. Thinking it was just dry skin, I began applying lotion more often. There was no redness or swelling, yet the…